Children and Adolescent Hand and Arm (CHArm) Center
The Children and Adolescent Hand and Arm (CHArm) Center at HSS is a comprehensive resource facility dedicated to the treatment, research, and education of all children and adolescents. Our multidisciplinary team of specialists provides care for children and adolescents with a variety of conditions including — but not limited to — orthopedic trauma and sports injuries, rheumatologic conditions, neurological disorders, congenital defects, and tumors.
The CHArm Center excels at the provision of quality care through both surgical and non-surgical interventions, and we are committed to increasing awareness about the treatment options available to families affected by hand and arm conditions.
Contact Us
To learn more, call 1-888-CHArm40 or email charmcenter@hss.edu.
Our Physicians
Caroline Knadler, PA-C, CHArm Director of Research
Caroline Knadler oversees the research division of the CHArm Center. She manages all CHArm research projects which includes completing IRB submissions, conducting literature reviews, collecting and analyzing data, and submitting articles for publication.
Services
The CHArm Center specializes in the surgical and non-surgical treatment of hand and upper extremity conditions including, but not limited to:
- Cerebral Palsy and Neurological Upper Extremity issues
- Sports Injuries
- Congenital Disorders
- Tumors
- Brachial Plexus
- Juvenile Rheumatoid Arthritis
- Shoulder Injuries
- Elbow Injuries
- Hand Injuries
- Arm Injuries
- Hand and Arm Fractures
The CHArm staff also serves in a liaison capacity between patients, doctors, therapists, and others involved in the treatment of a patient's hand or other upper extremity issue. For those patients who do not seek follow up care locally, our rehabilitation staff will connect them with a local therapist to ensure that they receive the best possible rehabilitative care.
Cerebral Palsy and Neurological Upper Extremity (CPNUE) Program
The Cerebral Palsy and Neurological Upper Extremity (CPNUE) Program addresses the orthopedic needs in the upper extremity for patients with cerebral palsy and other neurological disorders. Problems related to extremity posturing, hygiene, and functional limitations are addressed in the shoulder, elbow, hand, digits, and thumb. This is accomplished through in-depth assessments and surgical reconstruction, when indicated. While the Program is offered by the CHArm Center — which caters to the needs of children and adolescents — all ages of patients may attend the service, and patients with all types of involvement are appropriate for referral.
The complete process of our Cerebral Palsy and Neurological Upper Extremity Service includes an in-depth traditional evaluation, often an electromyographic (EMG) evaluation, surgery, and post-surgical care.
Evaluation
The upper extremity evaluation for people with cerebral palsy is critical. A thorough evaluation process includes several components. It is often recommended to come in on more than one occasion to allow our professionals to have the opportunity to see your child under different conditions, as we know spasticity can have subtle and not-so-subtle changes from day to day. Your child's nervousness may also be a factor and must be considered.
Since everyone moves their hands and arms differently and has different strategies to get things done, our team also wants the opportunity to fully appreciate the individual characteristics of each patient. It is always helpful for our orthopedic team to see evaluations and progress reports from the therapists and doctors that are working with your child to further their understanding of his or her strengths and needs.
The pre-surgical evaluation for patients with cerebral palsy (CP) includes typical rehabilitation assessments such as range of motion (ROM), sensory testing, timed movement tests, and an activities of daily living (ADL) assessment. A videotape (in order to prevent your child from having to do tasks repeatedly) is often useful. A test called dynamic electromyography (EMG) may also be recommended.
The evaluation process may include giving your child time to develop goals and skills through pre-operative exercises and splinting. Since surgery is most often elective and able to be planned at the family's convenience, these factors dictate that from the first visit to surgery can be anywhere from 2 months to over a year.
Electromyography (EMG)
Electromyography (EMG) is a test that shows how much activity is being produced in each muscle. It is a very technical subject, but the basics of EMG are quite simple to understand. When your body moves a muscle, electricity is produced. Special electrodes are placed on the skin to listen to the electrical signal of muscles. The signal is converted to a line tracing very similar to one that you would see on a heart exam or EKG. Your therapist and doctor then read the pattern to determine which muscles may be showing more or less of a problem.
This type of exam works best on elbow muscles, where it is sometimes difficult to tell in a regular office visit which muscle is pulling too strongly. The EMG can help to show this. Below are EMG line tracings of muscles near the elbow. The top three muscles - the biceps, brachialis and brachioradialis — are muscles that bend the elbow. In the bottom row is the triceps, which straightens the elbow. The high and low part of each line drawing shows you that the muscle is "on" or "off". When the benders (flexors) have a high signal, the straighteners (extensors) should have a low signal, and vice versa.
Surgery
Common upper extremity orthopedic surgical techniques for cerebral palsy include muscle releases, lengthenings, and muscle transfers. These procedures address the soft tissues only, which include the muscles, tendons, and tissues around the joint capsules.
In lengthenings and releases, a portion of the muscle close to where it attaches to the bone is surgically cut to loosen it. In a muscle transfer, one end of a muscle is surgically cut and moved to an area nearby in order to change the direction of its pull. Neither of these procedures prevent future medical advances from being implemented, and both are relatively reversible.
If an area around a joint capsule is addressed (often in the fingers and thumb), a small wire may be placed in the joint space to help secure the joint while your child is healing. It comes out when the dressing is removed. In very extreme cases, where the hand position is very compromised, work on the bone may be done. This is not very common and is only done on adults with severe involvement, as it is not reversible.
The anesthesia plan differs with each patient and can vary from general anesthesia to local anesthesia with sedation. The type of surgery planned, the age of your child, his or her general medical status, and the family preferences all play a role in deciding the anesthesia plan. Patients and family members should have an opportunity to speak with the attending anesthesiologist to learn the pros and cons of each situation.
Most patients stay over in the hospital one night and some even go home the same day. After surgery, the arm and hand is placed in a half cast with a bulky dressing. Most patients are discharged with a simple pain reliever prescription. Ice and elevation help to keep the arm comfortable.
Within a few days, your child is ready to return to school. The dressing needs to stay dry for the next four weeks. The hard work begins four weeks after surgery when the bulky dressing comes off. This is usually an exciting but overwhelming day. The dressing is taken off, pins are removed, a plastic splint needs to be made, and exercises are performed. Many of the children, as well as their parents, are nervous. It is a big day, and anxiety is normal. The good news is that the real gains now start to take place during the post-operative period!
Who should contact the CHArm Center?
Parents of children and adolescents with acute injuries or long standing neurological or congenital issues of the hand, arm, and upper extremity, should call the CHArm Center at 1-888-CHArm40.
What kinds of conditions do doctors and therapists at the CHArm Center treat?
Some of the conditions the CHArm Center treats include, but are not limited to:
- Sports Injuries
- Cerebral Palsy
- Tumors
- Brachial Plexus
- Congenital Disorders
- Juvenile Arthritis
- Shoulder Injuries
- Elbow Injuries
- Hand Injuries
- Arm Injuries
- Hand and Arm Fractures
How will the CHArm Center help me find the right specialist?
You will be screened over the telephone and then referred to the appropriate CHArm Associate, matching your condition with the right doctor's clinical expertise. We seek to eliminate the hassle of seeing multiple physicians prior to seeing the appropriate specialist. Patient wait time is therefore reduced, and treatment is accessed in a timely manner. Parents with questions and concerns regarding their child's hand and arm condition can also email questions to the CHArm Center at charmcenter@hss.edu.
Will I have to participate in research studies if I am a CHArm patient?
Participation in CHArm Research Studies is strictly voluntary. CHArm patients will be asked to participate in observatory studies, where they will be asked questions throughout the course of their treatment. CHArm patients have many options - they can choose to participate or not participate at all, and if they do decide to participate, they can discontinue their research participation at any point in time.
What is orthopedic surgery?
Orthopedic surgery is surgery performed on bones, muscles and joints.
For patients with cerebral palsy, which parts of the body can be helped with orthopedic surgery?
Orthopedic surgery is performed both in the lower extremity (feet, legs, and hips) and the upper extremity (hand, forearm and elbow) for patients with cerebral palsy. This portion of the site will focus on upper extremity (UE) surgery for patients with cerebral palsy (CP).
How can orthopedic surgery help when spasticity, tone and movement difficulties encountered in cerebral palsy are caused by problems in the brain (or CNS)?
Since there are no known ways to operate on the brain to make cerebral palsy (CP) better, orthopedic surgery can help to "rebalance" muscles that are getting inappropriate signals from the brain.
Please give me examples of how muscles in the upper extremity can be "rebalanced" by orthopedic surgery?
Two common problems in cerebral palsy are muscles "overworking" and muscles "underworking". Overworked muscles would include increased tone or spasticity. Spastic or high tone muscles can be weakened by surgically sectioning (cutting) some of the fibers so they cannot pull as strongly.
Under-worked muscles would include flaccidity, weakness or decreased tone. Some muscles under-work so much that they do not fire at all. One option of aiding these muscles is to find a less-needed muscle that is working well and move a part of that working muscle to the weak area.
How do I know if my child is appropriate for orthopedic surgery in the upper extremity (UE)?
Anyone with muscle problems caused by cerebral palsy (CP) can be appropriate for surgery. However, your child will need an evaluation by an experienced team in order to assess his or her specific situation.
What is the best age for surgery on the arm and hand?
For patients with cerebral palsy (CP), the best age for surgery is about 6 years old. At 6 years of age, many children can follow simple directions but are still developing new skills, so they can integrate their new muscle patterns very well. Some children benefit from waiting until they are a little older. As an adult, surgery is still indicated, just more of the rehab will focus on retraining the muscle. A child will pick things up more spontaneously.
Is UE orthopedic surgery better for a certain severity of CP or type of disability?
(i.e. quadriplegia, hemiplegia, etc)
Most types of patients with cerebral palsy (CP) can benefit from orthopedic surgery. Goals of surgery can range from improving a dependent patient's hand position in order to make dressing easier for their caretaker to changing mild muscle tightness in independent patients.